Scientific program
   
Thursday October 16, 2008
   
7.45 - 8.45 ESIDjuniors Breakfast Session "Meet the expert"
  Location for this session only: Hotel Central (click here for route and map)
MTE 1  BMT
  Andrew J. Cant (Newcastle, United Kingdom)
MTE 2 Innate immunity
  Steve Holland (Bethesda, USA)
MTE 3 B-cells
  Helen Chapel (Oxford, United Kingdom)
MTE 4  T-cells
  Hans D. Ochs (Seattle, USA)
MTE 5 Diagnostic protocols in PID
  Esther de Vries (`s-Hertogenbosch, The Netherlands)
   
9.00 – 10.30 Educational Day Session I: CVID
  Opening and welcome
  A case of agammaglobulinemia with normal count of B cells, associated with severe lung and liver fibrosis. A new disease?
  A. Trizzino (Palermo, Italy)
 

Serum antibody response to tetanus toxoid in children with Down syndrome

  M.A.A.   Kusters (‘s-Hertogenbosch, Netherlands)
  B-cell development and immunophenotyping
  Jacques J.M. van Dongen (Rotterdam, The Netherlands)
  Clinical aspects of CVID
  Helen Chapel (Oxford, United Kingdom)
   
11.00 – 12.30 Educational Day Session II: Autoimmunity / Immune Dysregulation
  Atypical onset of APECED (Autoimmune Polyendocrinopathy, Candidiasis, Ectodermal Dystrophy) in two siblings
  D. Montin  (Torino, Italy)
  Chronic inflammatory bowel disease is a new phenotype of Artemis deficiency
  J.C. Rohr (Freiburg, Germany)
  Hyper-IgE Syndromes: Progress in defining the genetic basis for these clinical entities
  E.D. Renner (Munich, Germany)
  Reconstitution of thymic function after gene therapy for ADA-SCID: preliminary observations by imaging and immunological studies
  F. Ferrua (Milan, Italy)
  Diseases caused by lack of immune regulation
  Hans D. Ochs (Seattle, USA)
   
13.45 – 14.45 Educational Day Session III: Deficit of innate immunity
  Disease related to NEMO and IRAK4 deficiency
  Jordan Orange (Philadelphia, USA)
  Neutrophil disorders
  A.R. Gennery (Newcastle, United Kingdom)
   
14.45 – 16.00 Educational Day Session IV: Infectious diseases / PID
  A patient affected by SCN with long term CSF3R acquired mutation and no progression in MDS/AML
  L. Giunti (Firenze, Italy)
  Complement factor B deficiency associated with recurrent asceptic meningitis
  F. Haerynck (Ghent, Belgium)
  Infections defining PID
  Andrew J. Cant (Newcastle, United Kingdom)
   
16.00 – 16.30 Poster viewing
   
16.30 – 18.00 Symposium "Women in PID"
  Esther de Vries (`s-Hertogenbosch, The Netherlands), Eleonora Gambineri (Florence, Italy), Helen Chapel (Oxford, United Kingdom)
  Guest speaker: t.b.a.
   
18.15 – 19.45 ESID-INGID-IPOPI Opening Session
  Chair: Esther De Vries (The Netherlands)
18.15 Meeting President, ESID President, INGID President, IPOPI President
18.45 Keynote Lecture: Trends in primary immunodeficiencies
  Alain Fischer (Paris, France)
19.30 Music
   
20.00 – 22.00 Welcome reception at Jheronimus Bosch Art Center
   
Friday October 17, 2008
   
8.30 – 10.30 ESID Parallel Session Ia: The thymus, T-cell development and auto-immunity
  Chairs: Naomi Taylor (France) and Maarten J.D. Van Tol (The Netherlands)
8.30 T-cell selection in relation to auto-immunity
  Georg Holländer (Basel, Switzerland)
9.00 Fingerprints of Human Cytomegalovirus on the immune system
  René A.W. van Lier (Amsterdam, The Netherlands)
9.30 Clinical experience in T-cell deficient patients
  Andrew J. Cant (Newcastle, United Kingdom)
10.00   Long-term thymic reconstitution following intrathymic transfer of progenitor cells in a model of ZAP-70-deficient scid
  R. Vicente (Montepellier, France)
10.10 Impact of thymic epithelium on immunopathology in lymphopenic mice reconstituted with hypomorphic Rag2 haemopoietic progenitors
  V. Marrella (Segrate, Italy)
10.20 Genetic defects of T-cell development affect organization and maturation of thymic epithelial and dendritic cells in humans and mice: Implications for leaky SCID and Omenn syndrome
  L.D. Notarangelo (Boston, USA)
   
8.30 – 10.30 ESID Parallel Session Ib: Innate immunity
  Chairs: Bodo Grimbacher (United Kingdom) and Jos Van der Meer (The Netherlands)
8.30 Signaling defect due to the mutations in Tyk2 and STAT3 resulting in hyper-IgE syndrome
  Yoshiyuki Minegishi (Tokyo, Japan)
9.00 The patients of Job: STAT3, IL-17 and the new face of an old disease
  Steve Holland (Bethesda, USA)
9.30 Identification of novel genes underlying the development of Herpes Simplex Encephalitis
  V. Sancho-Shimizu (Paris, France)
9.40 Defects of IFN? receptors 1 and 2 impair the phagocytic NADPH oxidase function and CYBB, CYBA, and NCF1 gene expression
  C.C.M. Prando (Campinas, Brazil)
9.50 EDA-ID due to NEMO mutation complicated by disseminated mycobacterium infection: Successful haematopoietic stem cell transplantation
  M. Abinun (Newcastle Upon Tyne, United Kingdom)
10.00 Severe score 5 WAS in infants: clinical and biological presentation and outcome. Analysis of the french national registry/CEREDIH network
  N. Mahlaoui (Paris, France)
10.10 A germline but macrophage-tropic CYBB mutation in patients with X-linked predisposition to mycobacterial diseases
  J.C.B. Bustamante (Paris, France)
10.20 A new form of Osteoclast poor Osteopetrosis due to mutations in RANK gene
  A. Villa (Segrate, Italy)
   
10.30 – 11.00  Poster viewing
   
11.00 – 12.30 ESID Plenary Session II: Extended frontiers in immunodeficiency
  Chairs: Jean-Laurent Casanova (France) and Bert Gerritsen (The Netherlands)
11.00 Crohn’s is an immunodeficiency disease
  Anthony W. Segal (London,United Kingdom)
11.30 Hemolytic uremic syndrome - a primary immunodeficiency?
  Marina Botto (London, United Kingdom)
12.00  Impaired ex vivo interferon production in a patient with severe varicella
  S.Y. Zhang (Paris, France)
12.10 Hereditary multiple intestinal atresia with immunodeficiency: Immunologic findings and differential gene expression.
  K. Chen (Los Angeles, USA)
12.20 A unique haplotype of the MUNC13-4 gene associated with familial hemophagocytic lymphohistiocytosis and macrophage activation syndrome in systemic juvenile idiopathic arthritis
  K.Z. Zhang (Cincinnati, USA)
   
13.00 – 14.30 Satellite Symposium: Baxter
  Click here for the symposium invitation and program
   
13.00 – 14.30 Satellite Symposium: Octapharma
  Click here for the program
   
12.30 – 14.30 Poster viewing
   
14.30 – 16.00 ESID General Assembly (members only)
   
16.00 – 16.30 Poster viewing
   
16.30 – 18.00 Workshop 1: Management of PID
  Chair: Anna Sediva (Prague, Czech Republic)
   
16.30 – 18.00 Workshop 2: Gene therapy
  Chair: Bobby Gaspar (London, United Kingdom)
   
18.30 – 19.30 Cultural Event at St. John's Cathedral
   
Saturday October 18, 2008
   
7.30 – 8.30  Breakfast Session II: Sanquin
  More autonomy for immunodeficient patients, new developments  in home treatment
  Chair: Esther de Vries (The Netherlands)
07.30 Treating immunodeficient patients, home therapy is the future?
  Helen Chapel (Oxford, United Kingdom)
07.35 From hospital to home treatment, the Dutch approach
  Esther de Vries ('s-Hertogenbosch,The Netherlands)
08.05 In my own hands, a patient’s view on home therapy
  Merlijn van Rij (Amsterdam,The Netherlands)
08.15 Sanquin Home Service, a tailor made service for intravenous and subcutaneous therapy
Video about the transition to home treatment of a Dutch family
   
8.30 – 9.30 ESID Parallel Session IIIa: Migration and regulation
  Chairs: Laszlo Marodi (Hungary) and Arjan Lankester (The Netherlands)
8.30 Migration and regulation of the immune response: Lessons learned from LCH
  Nicola E. Annels (London, United Kingdom)
9.00 MAS
  Gritta Janka-Schaub (Hamburg, Germany)
   
9.30 – 10.30 ESID Parallel Session IIIb: Visualization of the immune response
  Chairs: Naomi Taylor (France) and C. Weemaes (The Netherlands)
9.30 Monocytes and dendritic cells
  Frédéric Geissmann (Paris, France)
10.00 Imaging T cell activation
  Andrey Shaw (St. Louis, USA)
   
8.30 – 10.30 ESID Parallel Session IIIc: Stem cell regeneration
  Chairs: Mario Abinun (United Kingdom) and Ilhan Tezcan (Turkey)
8.30 Delineating the cellular and molecular pathways of hematopoietic lineage commitment
  Sten E.W. Jacobsen (Oxford, UK and Lund, Sweden)
9.00 Divide, differentiate or die? Manipulating hematopoietic stem cell fate decisions through molecular reprogramming.
  Paul Coffer (Utrecht, The Netherlands)
9.30   Immunomodulation by mesenchymal stem cells
  Katarina Le Blanc, (Stockholm, Sweden)
10.00 Hematopoietic stem cell gene therapy for Wiskott Aldrich syndrome
  K. Boztug (Hannover, Germany)
10.10 Stem cell transplantation for Nijmegen breakage syndrome – experience in 5 patients
  M.H. Albert (München, Germany)
10.20 Immune reconstitution in ADA-SCID patients treated with hematopoietic stem cell gene therapy
  I. Brigida (Milan, Italy)
   
11.00 – 12.30 ESID Parallel Session IVa: New insights in B-cell development
  Chairs: Bobby Gaspar (United Kingdom) and Lennart Hammarström (Sweden)
11.00 Dynamics of B-cell development
  Jacques J.M. van Dongen (Rotterdam, The Netherlands)
11.30 B-cells, genes and disease
  Mary-Ellen Conley (Memphis, USA)
12.00 Human CD20 deficiency impairs the ability to mount T cell independent antibody responses.
  T.W. Kuijpers (Amsterdam, The Netherlands)
12.10 Accumulation of specific memory B-cell subsets in peripheral blood of healthy adults in response to pneumococcal vaccination.
  R.S. Abraham (Rochester, USA)
12.20 Human PMS2 deficiency is associatedwith impaired immunoglobulin class switch recombination
  A. Durandy (Paris, France)
   
11.00 – 12.30 ESID Parallel Session IVb: NK-cells
  Chairs: Laszlo Marodi (Hungary) and Nico Hartwig (The Netherlands)
11.00 The role of NK-cells in shaping the immune response
  Eric Vivier (Marseille, France)
11.30 Insights into NK-cell function from primary immunodeficiency disorders
  Jordan Orange (Philadelphia, USA)
12.00 Human NK cells can control CMV-infection in the absence of T cells
  T.W. Kuijpers (Amsterdam, The Netherlands)
12.10 Dendritic cells require CD18 for normal podosome formation
  S. Burns (London, United Kingdom)
12.20 Wasp confers selective advantage for specific hematopoietic cell populations and serves a unique role in marginal zone development and function
  L. Westerberg (Boston, USA)
   
13.00 – 14.30 Satellite Symposium: CSL – Behring
  Click here for the program
   
13.00 – 14.30 Satellite Symposium: Grifols
  Click here for the program
   
14.30 – 16.00 Workshop 3: Diagnosis of PID
  Chairs: Esther de Vries (`s-Hertogenbosch,The Netherlands), Mirjam van der Burg (Rotterdam,The Netherlands)
   
14.30 – 16.00 Workshop 4: The ESID online registry: How can we use it to the full?
  Chairs: Gerhard Kindle (Freiburg, Germany), Taco W. Kuijpers (Amsterdam, The Netherlands)
   
14.30 – 16.00 Workshop 5: Stem cell transplantation
  Chairs: Mario Abinun (Newcastle, United Kingdom), Andrew J.Cant (Newcastle, United Kingdom)
   
16.30 – 18.00 ESID Parallel Session Va: Long-term management in PID
  Chairs: Eleonora Gambineri (Italy) and Jaap.Van Dissel (The Netherlands)
16.30  The adult PID patient
  Isabella Quinti (Rome, Italy)
17.00  Granulomatous disease in CVID
  P. Martin van Hagen (Rotterdam, The Netherlands)
17.30 Long-term analysis of immune reconstitution and clinical status after hematopoietic cell transplantation for severe T-cell immunodeficiencies
  D. De Martiis (Brescia, Italy
17.40 Long term cognitive outcome following HSCT for severe congenital immunodeficiency: what factors are associated with long term difficulties?.
  P. Titman (London, United Kingdom)
17.50 Clinical, biological and genetic characteristics of 242 patients affected with ataxia-telangiectasia: A retrospective analysis from the French primary immunodeficiency registry (CEREDIH)
  R. Micol (Paris, France)
   
16.30 – 18.00 ESID Parallel Session Vb: Th17 and Tregs in immune regulation
  Chairs: Bodo Grimbacher (United Kingdom) and Nico Wulffraat (The Netherlands)
16.30 Th17 cells
  Gitta Stockinger (Mill Hill,United Kingdom)
17.00  What do T regulatory cells see and do
  Ethan M. Shevach (Bethesda, USA)
17.30 Hyper-IgE associated mutant STAT3 proteins exert a dominant negative effect on STAT3 transcriptional activity via different mechanisms depending on the domain of the protein affected
  T.R. Torgerson (Seatlle, USA)
17.40 Mutations in STAT3 and IL12RB1mpair the development of human IL-17-producing T cells
  L. De Beaucoudrey (Paris, France)
17.50 Impaired Th-17 responses in patients with chronic mucocutaneous candidiasis
  D. Lilic (Durham / Newcastle Upon Tyne, United Kingdom)
   
16.30 – 18.00 Workshop 6: PID diagnosis and management beyond Europe
  Chair: Yu Lung Lau, Hong Kong (China)
   
20.00 – 24.00 Gala dinner (ESID-INGID-IPOPI members and their accompanying persons only) at the Orangerie
   
Sunday October 19, 2008
   
08.30 – 10.30 ESID Plenary Session VI: Novel Primary Immunodeficiencies & Late Breakers
  Chairs: Jean-Laurent Casanova (France) and Andrew J. Cant (United Kingdom)
8.30 A novel clinical syndrome associating severe congenital neutropenia and complex developmental aberrations caused by deficiency of G6PC3
  K. Boztug (Hannover, Germany)
  LAD-1/variant syndrome is caused by mutations in FERMT3
  D. Roos(Amsterdam, The Netherlands)
  Kindlin 3 - A new gene involved in the pathogenesis of LAD III
  A. Etzioni (Haifa, Israel)
9.10 Human adenylate kinase 2 deficiency causes a very profound haematopoietic defect associated with sensorineural deafness (Reticular Dysgenesis)
  M.C.C. Cavazzana-Calvo (Paris, France)
  New non-homologous end joining defect in radiosensitive T-B- SCID: Identification of the first human DNA-PKcs mutation
  M. Van der Burg (Rotterdam, The Netherlands)
  Human CD27 deficiency: a novel immune-deficiency causing EBV induced lymphoproliferative disease
  J.M. Van Montfrans (Utrecht, The Netherlands)
9.50 Antibody-deficiency and Acute Nephritic Syndrome in a Patient with Homozygous Disruption of the CD81 Gene
  M.C. Van Zelm (Rotterdam, The Netherlands)
  Pyogenic bacterial infections in humans with MyD88 deficiency
  H. Von Bernuth (Paris, France)
  Chronic mucocutaneous candidiasis is associated with a homozygous mutation in CARD9
  B. Grimbacher (London, United Kingdom)
   
 11.00 - 12.00 ESID Working Party meetings:
SCT & GT, Clinical, Genetics, Education, PID-care in development,
ESIDjuniors and ESID website demonstration
   
12.00 – 13.00 ESID-INGID-IPOPI Closing Session
  Chair: Esther de Vries (The Netherlands)
12.00  Keynote Closing Lecture: Future developments in innate immune deficiency
  Dirk Roos (Amsterdam, The Netherlands)
12.45  IPOPI President, INGID President, ESID President, Meeting President

 

IPOPI Main Topics
• How to develop and raise funds for your national member organisation
• Proposals on guidelines for the appropriate use of immunoglobulin in the US and UK
• Vaccination problems for PID patients
• How to work with national regulators and health authorities
• The importance of national and global statistics on PIDs
• Exchange of experiences
Click here to download the IPOPI Programme

INGID Main Topics
• Therapies / treatment
• Nursing research in PID
• Advances in paediatric nursing related to PID
• Health related quality of life
• Psychosocial effects of immune deficiency
• Case studies
 
Click here to download the INGID Programme